I often wake up with a rock in my stomach. A solid, heavy rock. Sometimes it feels that it’s spinning, other times it’s pulling me down. Occasionally it makes me dizzy or nauseous. Some days it feels bigger, some days I can barely feel it, but it’s still there. That’s how anxiety manifests on me.
I don’t remember when I started struggling with anxiety. I suspect I always had it, since I was a child, I just didn’t know what it was. I was always a worrier. I remember worrying every time an inspector came to school to check us for lice in case I had any and got embarrased in front of the whole school, or whether my skirt was caught in my underwear (this still worries me!). As I grew older, my concerns took various forms and combined with a few traumatic experiences e.g. my ex stalking me for a year or so, emotional abuse etc, I reached a point I couldn’t handle it more than once.
Only in the last few years I manage to cope more efficiently. I just cope, it doesn’t really go away. But even to the day, every now and then it gets out of hand. Only a year ago, I was so stressed I lost my appetite and that gave me sever stomachache. It physically hurt to eat anything. After that, I promised myself I wouldn’t let it reach to that level again.
It can still happen, I know that, but at least I can handle it better. Yoga, running, my guitar, writing, travelling, spending time with loved ones and a lot of me time help me the most.
(check my page for more) and I’ve been chatting about it with strangers, colleagues, friends, and loved ones for years. I don’t think I’ll ever stop!
Although I had a great week, going to the vegetable and fruit market after many many years, a day at the beach, a few days in Berlin (minus the cruel flight times and the extreme heatwave), the halloumi and anari workshop, and relaxing at the swimming pool afterwards, my anxiety levels have been off the roof as my to-do list grows longer and longer!
Anxiety hits you in many shapes and forms. For me it’s psychosomatic, it gives me headaches and stomachaches and occasionally panic attacks (and insomnia), for others it’s heart arrythmia, blurry vision, nightmares, compulsive eating. Anxiety is a beast, it can cause or aggravate other disorders e.g. OCD and depression and it’s quite common.
According to a 2018 OECD (Organisation for Economic Co-Operation and Development) report, “The most common mental disorder across EU countries is anxiety disorder, with an estimated 25 million people (or 5.4% of the population) living with anxiety disorders, followed by depressive disorders, which affect over 21 million people (or 4.5% of the population)”.
And based on a World of Health Organisation (WHO) report, “In the first year of the COVID-19 pandemic, global prevalence of anxiety and depression increased by a massive 25%”.
So, let’s talk about it, learn how to recognise anxiety signs and symptoms on ourselves and others and help each other. How do you experience anxiety?
Today I want to talk to you about my friend Alexei.
We met back in 2019, on a cool October morning. I had just moved to Reggio Calabria, in South Italy working as an EFL (English as a Foreign Language) teacher and I spent my morning lesson planning, then Alexei walked in. I still remember the first time I heard his beautiful, deep voice and Southern African accent, and I saw his wide smile.
Alexei had an infectious laughter and a unique, wicked sense of humour. He loved sarcasm and self-depracating humour. Although he was raised in South Africa, his parents were also Greek and he spoke a bit of Greek too. He loved and cared about everyone around him, one of the most empathetic people I’ve met. We connected straight away.
Despite a global pandemic forcing us to spend half of our teaching year indoors and online we managed to make unforgettable memories together like our long weekend in Palermo, wandering around, shopping, drinking, having a laugh and chatting about life, our random pizza dinners in town, co-presenting quiz night, our beach day in Tropea with the rest of the Reggio gang and many, many more little, every day interactions.
We never made it to Taormina or Pentadattilo together before leaving Reggio like we said we would, but he promised to visit me in Cyprus soon.
We messaged each other every now and then but we hadn’t chatted for about a year. Last time we spoke he was really happy with his new job and life in Vienna.
Suddenly, 5 days ago I saw a Facebook post about Alexei, that I still cannot believe.
He died a few weeks ago. He took his own life.
It breaks my heart to think how horrible and lonely it must have been for him. He cared deeply for so many people and we would all have supported him if he had just reached out. I also feel incredibly guilty I let life get in the way and we lost touch for a while.
Depression kills, and even more so amongst men, since society taught them since they were children that sharing their feelings somehow make them look ‘weak’. Alexei had no issue expressing his feelings and his struggles, he was always open about his life, his sexuality and his frustrations, which makes it even harder to believe he kept all this struggle for hismel and reached a point that life was so unbearable for him that he didn’t want to live anymore.
The reason I’m sharing this story is to remind myself and everyone else to keep in touch and check in with our friends and loved ones regularly and please please, if you are struggling, tell someone, you don’t have to go through it alone.
Alexei’s death was incredibly sad and painful for all of us who knew him and we’ve been sharing photos and stories of Alexei with each other over the last week, because that’s how we’ll remember him, having a laugh together, hearing his beautiful laughter and picturing his gorgeous smile.
Mojo: a quality that attracts people to you and makes you successful and full of energy (Cambridge dictionary).
What a week it has been. Suffering from COVID (or any other illness) whilst stuck at home, helpless, depending on others to bring you essentials (thank you mamma!) surely takes its toll on you.
I didn’t make it to a work event on Friday or my colleague’s wedding on Sunday. I felt guilty and sad about it, there was nothing I could do though. I had no physical or mental energy left.
My batteries ran out, completely. Walking longer than a few minutes at a time or concentrating on a task requires serious effort.
I’ve been feeling tired, unmotivated and stuck for a while now, and a week at home with COVID only amplified those feelings.
I ran out of mojo and I don’t know how to refill the pot. I’m tired of running around, always playing catch-up, worring about money, never having enough free time to see all my friends, do everything or even some of the things I’d like to do.
I often ask myself lately, why am I doing this? What can I do to feel motivated again? Am I the only one feeling like this?
This pretty much sums up my week. How’s yours been?
Oh, I did make it for a walk in Kaimakli (a Nicosia district, by the borders) on Saturday evening, since there’s a little festival going on (Pame Kaimakli Festival: Urban Playground). It felt great to be out walking about (a little bit at a time), admiring the architecture and chatting to strangers, reminiscing of childhood memories in Kaimakli, the St Barbara church and father Marios, a priest my mum used to take us to as kids I used to love, with his long beard and pony tail, and of course many memories of Kalamies tavern by dad used to work at for years. The festival is on until Wednesday, for anyone interested!
PS Thank you to all you gorgeous, loving humans who messaged not only get well wishes, but sharing how you’ve been through COVID, symptoms you had and super useful tips on recovering. It makes this blog series even more worth it and it gets us all talking about mental health, which is what this is all about!
*This blog was written whilst suffering from COVID-19 symptoms, therefore some of the text might not make complete sense.
Ever since I wrote about lack of mental health NGO’s in Cyprus and how it’s still considered ‘awkward’ or ‘taboo’ or ‘weakness’ to talk about mental health, I’ve been torturing my mind on how I can promote opening up and talking about mental health, and I thought I’d start small with a weekly Monday special, writing about a topic that came up during the week I had to deal with, or a family or friend went through, or a random chat I had with a colleague or a loved one. I chose Mondays for obvious reasons, since the majority of us struggle with Monday and any stress relief and an opportunity to chat about mental health can definitely help! Mental Health Mondays!
So here’s the first in a hopefully long series of exclusively mental health write-ups. I encourage you to and hope you comment and share your experiences too and suggest topics or even write a guest post. I really want to show with this blog series that we all go through similar situations and we all struggle at points, but also how we look after our mental health in general. So, let’s talk about mental health!!
This week’s topic:
Getting COVID after about 2.5 years of desperately trying not to and how it messes up your life for at LEAST a week.
Monday, 27/6/2022
The week had started well. I went back to the office after two weeks (Karim, my other half broke his foot and I worked from home for a couple of weeks to help out around the house), which was eerily quiet (many colleagues seemed to have gotten the new virus variant) and spent the day organising my tasks for the rest of the week as I was going on a work trip to “The Nymph of the Thermaic Gulf”, the beautiful Thessaloniki , the following day until Thursday. I hadn’t been in years and although I would only really have half a day to wander in the little alleys, huge squares and the seafront, I was quite excited about it.
Tuesday, 28/6/2022
Tuesday was a brilliant, but exhausting day. Karim finally had his MBA thesis presentation (and passed with flying colours!) and the last few months of spending our afternoons or weekends with him studying and me joining him and helping him on the way, finally paid off! But no time to celebrate as I was flying to Thessaloniki in the afternoon! So, after a couple of hours of work, I made it to my colleague’s, Andria, who was joining me on this trip (thanks to super driver aunt Litsa!) and we headed to the airport. We made it to Salonika late at night and after we checked in at the hotel and a quick takeaway souvlaki, we went to bed, knackered.
Wednesday, 29/6/2022
Wednesday started off well with hotel buffet breakfast and after another morning coffee thanks to Andria’s kindness and generosity we headed to our meeting at the University of Macedonia. I keep forgetting how old and often dingy buildings are in cities like Thessaloniki, so it caught me by surprise how horrible the University building looked like. After a 4-hour long meeting and a quick lunch, we finally had the rest of the afternoon off to explore the town. And it was a gorgeous afternoon, visiting the infamous Saint Demetrios kathedral, the patron saint of Thessaloniki, and walking around town chatting along,
which ended with a delicious, albeit heavy feast at a local taverna, my lovely colleague Loizos, who I absolutely trust when it comes to food, recommended, and which I now definitely recommend, Katsamaka. I went to bed feeling I was about to burst from all the food, tired, and with a bit of a sore throat, but I assumed that was due to all the travel, walking and busy schedule.
Thursday, 30/6/2022
I woke up with a bit of a sore throat, but again I brushed it off due to a million other reasons other than COVID. I did a self-test on Tuesday morning, I had no other symptoms anyway and most of people across the Mediterranean are getting ill with all the high temperatures and use of AC, this can’t be the virus.
After a short delay on our flight, Andria and I made it back to Cyprus. Stella, my middle sister was to pick me up from the airport, wander for a bit and then go back to the airport to pick our little sister up, since she was coming back from Brussels for the summer. I asked Stella to bring a self-test with her, just to make sure I didn’t have the virus. In the meantime, my symptoms were getting worse. I felt a bit of a chill and feverish and swallowing really hurt. The test was negative. OK, so it was just a really bad cold. Or that’s what I thought.
By the time I made it home, I completely ran out of energy and I couldn’t swallow from the pain.
Friday, 30/6/2022
5:30am
I didn’t sleep a wink. I kept tossing and turning, I had high fever, my throat hurt like hell, which made me feel nauseous and dizzy, I barely made it to the loo once, or twice during the night. It was the worst night I had in years.
This can’t be just a cold. I haven’t felt that ill since January 2020, and I remember that because I think that when I got COVID the first time, before the global outbreak, when I had a persistent cough and fever on and off for weeks.
I decided to do another test. Sure enough I tested positive.
I had no idea what the process was from now on and what to expect. My mum of course was my first call for support, as she had got it a few weeks before. She told me to message our GP as soon as possible and asked him to call me when he can. He prescribed a syrup and advised me to take vitamins C and D and Nurofen for the fever. He also told me I had to pop to a pharmacy to get tested so they can report me as a positive case.
After barely making it to the pharmacy, I just lied on the sofa and stayed there. I felt rough as hell for the whole day. I was terrified about my breathing and any other severe symptoms I might develop and I was also devasted all my weekend plans were cancelled. No dinner out on Friday, no beach on Saturday, no mountain festival on Sunday. And the sad realisation, that pretty much my plans for the rest of the week would have to be cancelled. I was really looking forward to the kite making workshop!
But none of this really matters. As long as you are healthy. Isn’t that what we all realise every time our health is compromised? Well yeah, but you can still feel rough and miserable and unhappy and of course scared. I could never be sure whether that pesistent cough and fever I had back in January 2020 was COVID, so catching the virus always scared me as I wasn’t sure what to expect. You never know how your body would react, no matter how healthy you are.
Today is day 4 and after a few days of sneezing, coughing and a sore throat, I now lost my sense of smell, which inevitably affected my sense of taste. For those of you who know me, you know how much I love food, so not being able to smell or taste anything is killing me! But I’m OK. Getting better slowly. The medication definitely helps, as well as Netflix, reading, DuoLingo and puzzles! Mentally I’m exhausted. It hasn’t been the easiest few weeks and this was going to be the first one in a long time to have been going out on events and workshops and the beach. So, not being able to leave the house, go for a run, a walk or really do anything is really painful. It’s only been 4 days but it feels like 4 months!
I managed to give the virus to my sisters (well the little one probably got it from the plane), my other half got it from a night out last week and my mum who has just recovered from it is going around our flats delivering supplies! My dad hasn’t got it yet and fingers crossed he won’t, he is the one we are all the most worried about.
That’s my COVID adventure so far. Now I need to lie down again, my energy levels are running low, and the 39 degree heatwave doesn’t help.
Did you go through it? How did you feel about it? Let’s talk about it.
Back in February 2016, on the 25th of February, I started a blog, this very blog.
I wanted to for a while but my then boyfriend kept discouraging me, arguing that I had nothing to say.
So, just after our break-up and a series of other unfortunate events (which I wrote about at the time), I started “What I learned before I turned 30”, a personal journal sharing what I learned so far in life, a few months just before I turned 30, which actually has helped me (and it still does) to make sense of what was happening at the time and helpfully reassure others that they are not alone, we all struggle in life.
A few years later, I decided to change the name of the blog, since I had already turned 30 and it didn’t make sense anymore. At the time I thought it was a good idea to name it ‘Eleni’s world’ since it was more autobiographical and a mix of different things, and honestly I couldn’t think of a better name.
A few days ago, whilst pondering how to make more time for myself and things I enjoy doing, before I turn completely crazy and exhausted from life, running around like a headless chicken, I had an epiphany.
Why don’t I name my blog ‘Lessons I learned after I turned 30’?
I haven’t been posting as often lately, though I really want to and I’m planning to, and giving the blog a revamp and a more specific identity can movitate me to do that.
So here it is. The new name of my blog.
Lessons I Learned after I turned 30, let it be English or Life lessons, lessons from my travels, personal and work life.
It often comes to my mind, that, when I was in high school, I’d regularly get upset about the fact I couldn’t accurately, and in the way I truly wished, articulate my thoughts and opinions when writing essays. There was always a barrier. There was always something missing.
Years later, when I started putting my thoughts on paper (and later on a blog) it somehow became easier, as if I was released from whatever kept my expressive side blocked and silenced. And I feel that’s how talking about mental health evolved over the years not just for me, but for the rest of the world too.
Although I studied psychology for my first degree, even then, about 18 years ago (I’m almost 36, to save you from the trouble of calculating my age), there was a stigma about it. Not many (if any) would openly admit they suffered from depression, or anxiety, or autism, or bipolar disorder, or panic attacks, as it was considered a weakness or pure ‘insanity’. You would only see a psychologist if you were ‘crazy’.
After living in the UK for 10 years, having volunteered for a mental charity, having written about depression and anxiety myself, seeing, listening and reading about people openly sharing their feelings and troubles, witnessing mental health organisations growing in numbers and popularity (NGOs such as the Samaritans or Mind or social enterprises like the brilliant Touch I used to volunteer for) I was under the impression things would have progressed in Cyprus too, not to the degree they did in the UK, but certainly to some extent.
Surely by now people would have realised that is as important (if not more) to look after their mental health the way they look after their physical health. If you break your leg, you’d go to the doctor, if you are paralysed from anxiety, you’d go to a psychologist, right? Not to mention the effects of the digital era, as well as the global pandemic on mental health, and the fact that we are all busy, all the time. One day we’ll reach to a point we’ll have no time to breathe (just writing about it stresses me out) .
A few days ago, whilst enjoying a coffee on my own at a local cafe, I was brainstorming ideas on what organisation I can volunteer for, and I was unpleasantly surprised to discover after looking up mental health NGOs to volunteer that there aren’t really any on the island!
Why is that? Is it because there’s still stigma around mental health here? Are people here still in denial about the importance of looking after your mental wellbeing? Are they scared to admit when they are struggling? Do they still perceive sharing your feelings as a weakness (it’s one of the hardest things to do actually and it shows strength and character, a brilliant example of the power of vulnerability as Bene Brown eloquently talked about it a few years ago https://youtu.be/iCvmsMzlF7o) ? Is it because there isn’t enough interest by locals or psychologists?
I have been talking about it with a few friends and colleagues lately and I’m still baffled why that is and I wish I had the means to set up a mental health NGO myself, just to make a start.
For now I can’t, but what I can do is continue to talk about mental health with friends, family and strangers, because every time I do, someone would relate to and share their own experiences (which I love to hear about, everyday human stories are so powerful in so many ways) and that’s a clear sign that any outlets to talk about mental health struggles with others in a safe, non-judgmental environment, where you can also receive relevant advice and/or training on how to identify signs or symptoms of a person suffering would be of great benefit.
Who knows, maybe we can soon start a movement and change things up on the island, at least when it comes to mental health!
I woke up early, earlier than my usual ‘get out of bed’ time and I was trying for a few minutes to remember what day it was. Lately, everything in my brain is messed up, turned into a huge tangled up ball of information, dates, worries, anxieties and at times throughout the day I get tiny panic attacks thinking about three million different things at once.
Will I finish everything on time?
Will I meet all my deadlines?
Will I be able to book a holiday soon? Will I be able to travel this year at all?
Is this how life going to be from now on?
Will we ever go back to normal?
What is normal?
Do I like living back in Cyprus? When will I adjust and how amidst the pandemic chaos?
I miss the UK a lot, should I move back in a few years?
What do I even want to do with my life?
This is just a small sample that goes through my head, all day, every day.
I can’t switch off, my eyes often hurt from the amount of time I spend in front of a screen, let it be phone, laptop or TV and I feel so tired I have no energy to do much after work.
I have very little free time for myself, and even when I do, I’m most of the time too emotionally and mentally drained to do anything else other than read a couple of pages of a book, watch an episode of a series, or the Cypriot version of Chase. I still do my Yoga and started running again, the park near my new flat is gorgeous, so at least I have that.
I rarely see my friends, we mostly chat online and I visit my family once a week. Other than my flatmate-sister I don’t have any other significant social interactions.
I haven’t travelled in months, I haven’t even travelled within my island for a while.
My emotions are all over the place and I get teary quite easily, well, easier than before.
I haven’t slept well for a while, I put on weight because I snack a lot, being home all day my only breaks are to snack and most of the time I spend the day in loungewear.
Social media and message notifications never stop, day and night, an inevitable side effect of the lockdown. It’s hard to keep up and sadly, I admit I can’t really keep up. I can’t possibly read and reply to everything or stay on top of news, videos, articles etc I’m sent or come across (after watching the Social Dilemma on Netflix, I’m even more aware how algorithms work, so I try not to feed the monster that often, but it’s proven rather difficult, considering it’s virtually impossible to survive without technology, the internet, social media.).
On top of that, I’ve only been back to Cyprus for a few months and I have spent most of that time under unique conditions, I haven’t had the chance to find my feet and adapt to my new life. The daily horrific news, the archaic legal system, sexism, racism and a number of other social issues I hadn’t realised beforehand, haven’t made it easy, I must admit.
Lest we forget the inability to plan in advance, organise a holiday, make plans for the future, is just devastating to even think about.
It’s like we are stuck in Groundhog Day over and over and over.
In any other circumstances, dealing with each problem or situation individually it would have been easy to cope with, but dealing with all of them, anxiety, social isolation, social media overload, exhaustion and the list goes on, is unbearable. I feel I’m drowning, I can’t see light at the end of the tunnel, it’s as if the sun is forever hiding behind huge grey clouds.
And this is not just me. The majority of my friends, colleagues and other people I talked to feel the same, and I’m guessing they are not the only ones.
I’m lucky I have a job and I live with my sister, but for others, the second lockdown effects are much much worse. They live on their own with no support network, a lot of people are sadly unemployed and it’s incredibly hard for them to find a job, even a temporary one now under these circumstances and let’s not forget all the businesses and freelancers who went bust or are dangerously near bankruptcy.
I fear the repercussions and impact of this second lockdown (the first one was a completely new experience to all, noone knew what to do what was happening, now life is supposed to continue, despite the lockdown) will be long and painful.
Do the benefits of lockdown outweigh the horrible effects on mental health? Is it worth damaging our mental health permanently? There are children who were born and only experienced life in lockdown, there are children who went to primary school for a month before spending the rest of their first ever school experience at home, there are teenagers who started university online, there are young adults who entered the world of work for the first time straight working from home. Suicide rates have gone up, psychologist appointments are high on demand and many fellow humans suffer in silence.
I personally think that we’ve all had enough of the lockdown. It’s time to get out, let the sun shine again, live like human beings, hug and kiss each other again and just be careful and responsible so there isn’t another outbreak.
Amen.
Eleni
PS To cheer us all up a few poems I wrote and some travel articles I posted on my other blog are coming super soon (well, maybe not so much the poems, they are rather melancholic).
‘What do you want to be when you grow up?’ everyone would ask when I was a child, a teenager, a young adult.
The answer differed as I grew up. A doctor, a singer, an actress, a teacher, a psychologist, a travel writer.
And when I grew up, I became none of these. I’m not even sure what I became.
A year ago I quit my office job, I left the UK, got a CELTA, taught English in Italy for a year and now I’m back home to Cyprus after 10 years and I have no clue what to do next. It’s exciting, in theory I can do anything but I’m mostly terrified and worried I’m too old, I’ll run out of money and end up nowhere.
We were brought up to believe that by the time we hit 30 we would have tried a few different jobs and settled on a career and be happy with that one dream job, or at least be happy enough to stay in a job indefinitely.
But a single career path is not for everyone and not always the case. A lot of successful people in pretty much every field changed careers when they were older and wiser or kept changing careers or juggled more than one jobs until they died.
What do I want to be now I grew up?
I’m one of those people. Not a successful one, not yet anyway but there’s so many paths I’d like to follow but it’s impossible to try them all and even harder to stick to one or two.
Some are technically, and by technically I mean financially, not possible. One of the occupations I always wanted to go into was counselling. But I can’t afford another qualification. I can’t even ask for a loan as I’m now back to Cyprus and all the excellent credit score I built up for years in the UK won’t help me much here. Do I even want to have a debt?
Should I continue with EFL teaching? I could but my first year though rewarding, was exhausting and had zero time for myself, my friends or to travel. And should I risk going to another country and end up locked inside teaching online because of this pandemic’s unpredictable course?
I could become a writer. The idea of writing a fantasy/crime novel always excited me or a raw honest non-fiction on how society, social status and let’s face it wealth (or perhaps lack of) can and has for generations embedded a deep fear of failure especially in women. It’s always tougher for a woman, let alone one with no savings or family money to have ambitions and not let disappointment take over.
I sadly not only realised that for myself (after years of deep self-exploration) but I see it in dear friends and family who are better in what they do than others who might have become famous or run their own business but they are too shy or lack the confidence to ask or go for more.
That’s why the majority of politicians, business owners, celebrities and so on come from wealthy or at least upper-middle class families with connections and financial support making it easier to succeed.
I should believe in myself more, but at the moment I am crippled by my own insecurities and fears.
So what do I know about myself when it comes to my next career step now that I’m on those crossroads?
I don’t want to be stuck in an office 9-5, I’d love to travel and most importantly I’d be over the moon if what I do for a living helps others in any way.
Unfortunately volunteering doesn’t pay and living with my parents after 10 years living on my own is tough. I need my own space to keep growing and figure out what to do next.
For now, I’ll keep pushing myself to do more, trust myself and try not to stress about money and work and in the meantime if you have any personal inspirational stories or any piece of advice, please do share!
Happy Easter. I was supposed to be in Vienna today with my little sister, but I spent most of the day with Charlotte Bronte and Jane Eyre. I was so enchanted by it, I could barely let the book down. I’m not happy about this turn of events, but I’m not miserable either. I guess I’m now more used to spending endless time by myself.
I’ve been pondering for a while about the situation we are in and how our brain copes with it.
We humans have two fundamental characteristics that are perhaps in conflict in some aspects right now. We are creatures of habit, apparently it takes 30 days to form a habit and we are also social creatures.
The lockdown put us into social isolation, yes we face time and text but we don’t hug each other, touch each other, walk together, comfort one another, so at the moment we form habits that perhaps are not healthy to have when this is all over. We socialise and interact differently don’t we?
So my question is, when this is all over, how easy will it be to go back to our previous life? Will we ever go back to whatever ‘normal’ was? Can these new habits be useful in the new normal or will this experience leave us with issues we won’t necessarily know how to deal with or fears we can’t shake off or will our innate social ‘insticts’ kick in?
I posed the very same question to my friends. Some seem to think that as soon as we are let out (which I’m sure it will happen gradually, no country will risk another wave of infections) we’ll be back to our old selves straight away.
Others think that will not be the case, which I tend to agree with. I personally believe we’ll never go back to ‘normal’ the way it was. We will initially be scared of human interaction, shopping, being outside, we might not even crave going outside, since we are now used to keeping ourselves entertained indoors, but at some point our social nature will prevail, and though initially we’ll appreciate every moment we’ll then get used to our new reality again and get close to what ‘normal’ was.
But I don’t think we’ll ever go back to how we used to live. Fear never really goes away. We’ve all been traumatised but also formed new habits, learned to live with less of everything and by we I mean the whole world, how incredible it is that the whole planet is going through the same situation all at once, so we’ll all deep inside have this experience affecting our lives for ever and we hopefully learned a few things about ourselves and our future.
But this experience is not the same for all of us, for some it’s not as challenging or even difficult.
I had a chat with my friend Claire about this, who’s been diagnosed with autism a couple of years ago and I found it incredibly fascinating how her amazing brain which is wired differently to most is coping with this. I asked her if I could send her a few questions and here it’s what she said. I’ve learned a lot from reading it and I think you will too.
1. For those who might know enough if anything about autism and it’s different aspects how would you describe it and how is it for you?
Autism is hard to explain because it is vast and complex (as is everything brain related.) Autism is a neurodevelopmental difference in the way the brain functions. You can’t see my brain functioning, but it affects nearly everything about me. My personality, my sensory experience of the world, my memory, my development, the way I communicate, how I think, how I move.
There’s nothing ‘wrong’ with autism but, because we are the minority our condition is classed as a disability. But that’s just because the social world doesn’t accommodate us yet.
2. How are you coping with lockdown?
Adapting suddenly (well, inventing from scratch) a new routine – making it intricate enough to curb the anxiety of ‘empty’ minutes – was challenging beyond words. But now I am coping very well. The social world, and it’s uncertainty and misunderstanding, is overwhelming for someone like me, and therefore I am a regular self-isolator!
It takes a lot of conscious energy to be around other people. This is partly because I have to ‘mask’ a social and communication disorder, and partly because the worry about what other people think about my ways and responses to our shared world, is draining. People people people. This is not the same as being antisocial though. I love my friends and I value people very much indeed. I’d want to be the one to help someone in a crisis and I’d be the first one to support their projects and celebrate their victories. But the rules of conversations and spontaneous social times are far from natural to me.
3. How is it different for you?
In order to socialise and communicate with a person I need there to be a very clear purpose and for the words spoken to be clear and direct. Even then, I process information and conversation much more slowly than other people because I can’t filter out environmental distractions and because I need to physically see things to understand them. I’m often tired by this (and the subsequent shame) so I need to isolate to get my energy back. This means I very often feel lonely and separated from the rest of society.
Right now EVERYONE is in isolation, and for many active, extroverted, sociable autistics, and especially the non-autistic community, they maybe feeling this type of uncertainty and separateness for the first time. People are inventing ways to stay in touch although they’re not together (like online quizzes and things) and these online social events are accessible for autistics too!
I hope these continue forever, because, it means those who struggle socially can still participate in the fun activity and not worry about the social element – therefore being less lonely.
4. What advice would you give to others? Any tips from your experience?
Generally speaking, non autistic people prioritise communicating and socialising with others, whereas, autistic people prioritise the environment, detail and solitary hobbies and projects. Non-autistic people are sort of being forced to experience the world from the perspective of an autistic person for the first time (they’re just avoiding a virus instead of the social/communication etc.) So, with that in mind, I would advise the following.
Yes… socialising and communicating are valuable to most people, I completely empathise, but when doing those things you miss so much. Now is a chance to focus in on the environment, the detail in rooms and objects, and intricate, time-consuming, all-encompassing hobbies, interests, projects, learning. Not for the purpose of working, or competing or recording, but just for pleasure.
If you think you can’t do it because you have children, let it be your project to encourage THEM to investigate the environment, the detail, the comfort of a new special interest. If you find a nice flower, look at it closer. If you see something interesting, look at it for longer than you normally would, and from all different perspectives. If you smell something lovely, savour and memorise it. If you read an interesting article, research more around it, that kind of thing.
People are starting to do it… they’re posting things about the beautiful places they live near, the weird things they’ve got in their house and they are sharing nature, art and ideas. This should become a habit beyond isolation. Look at things more intricately than you thought possible and awaken a quest for knowledge about those tiny details… then you will begin to experience an autistic-like joy. There is so much joy in the ‘little’ things – and you know … you’ve all got each other again when it’s all over.
Thank you Claire for such an informative and insightful interview!
I’ve been back to Cyprus for two weeks now and I’m still ‘adjusting’. It’s never been that bad before, maybe because I always had an end date in mind or I had somewhere and something to return to, regardless how gravely I disliked it, or maybe so much happened in the last month alone, my brain is still struggling to fully comprehend what is going on.
But it can’t explain my annoying, pretty much constant (with very brief moments of happiness, laughter and relaxation) irritableness, and no, it’s not hormones.
I’mlike an upset, angry hedgehog, keeping my quills raised, prickling everyone in my way, blindly and indiscriminately.
Why do I feel like this? Why does every single thing upset me? Have I been away for too long? How long can I stick it out for? Should I just find a job in another country and leave ASAP?
Endless questions with no answers. Suddenly, out of nowhere Gaia Vince turned a shining light in this question mark shaped pitch black room.
“This idea that you gain a new personality with every language you speak, that you act differently when speaking different languages, is a profound one.” she writes in a brilliant article discussing the benefits of being bilingual. Ironically from the whole article I focused on one of the disadvantages of being fluent in two languages.
Am I really bilingual since I was born, raised and lived in Cyprus until I was 22 you might wonder. The answer is without a second thought yes. After 10 years of fully immersing in the British culture and way of life, I think and speak in English first.
Apparently bilinguals develop two different mindsets, they are a different person depending on the language they speak at the time (when you add the country they live in AND the language they speak at a given time in the mix that’s when it gets mind-baffling) and those mindsets are always in conflict as the brain is constantly trying to decide which language to use.
My two selves are always in conflict now that I’m back in Cyprus and not just the language parts. The noise, the attitudes, the people, the culture, everything I’d normally enjoy when I’m visiting Cyprus contradict my ‘British self’ who is dominating at the moment and can’t compromise and accept the fact now we are in Cyprus for (hopefully only) a few months it needs to let my other self out more or learn how to live here. My ‘Cypriot self’ is weak though and doesn’t even have an idea on what makes it Cypriot anymore, it hasn’t lived here for 10 years and since it last lived here it was a whole other person, an immature, 22 year old Cypriot who knew nothing about life or herself. That person doesn’t exist anymore but for most of my friends and family that’s the person they knew and sometimes treat me as if I’m that person, which doesn’t help with the eternal battle in my head.
So, I finally have the answer, but what’s the solution?
No idea. Though my ‘British self’ desperately desires to flee, I’m giving it time for now.
If you’ve been in a similar situation and/or wish to share some words of wisdom, please do. In the meantime, I’ll get back into my yoga and try to bring some calmness and tranquillity in this stormy, windy sea of my mind.
Lessons I learned after I turned 30 